Dravet Syndrome Conference 2019
From seizures to genes: how Dravet syndrome is changing the way we treat epilepsy
The Dravet Syndrome Conference “From seizures to genes: how Dravet syndrome is changing the way we treat epilepsy” will take place on Thursday 26th of September in Madrid, Spain.
Thursday 26th of September from 09:00 to 16:00h. Mark the date in your calendar and join us.
Fundación ONCE – Calle de Sebastián Herrera, 15, Madrid
Click here for further details
Participation in this event is free of charge but registration is obligatory. To register, simply fill in this form
Theme – From seizures to genes: how Dravet syndrome is changing the way we treat epilepsy
The theme of our 2019 conference is “From seizures to genes: how Dravet syndrome is changing the way we treat epilepsy”.
This event is designed to bring together a range of professionals committed to improving the lives of people with epilepsy, including clinicians, researchers and professionals from the pharmaceutical industry.
There will be speaker presentations on the latest advances in epilepsy drug develpment using Dravet syndrome as an example of how the understanding and treatment of epilepsy has evolved and is constantly evolving over the years.
Presentations will include a variety of therapeutic modalities including small molecules, antisense oligonucleotides and gene therapy.
Please find here the agenda
Who should participate
The organising committee encourages all stakeholders in health and medicines R&D to join this conference: policy makers, academics and researchers, pharmaceutical industry and other sectors in healthcare, SMEs and mid-sized enterprises, regulators, representatives of other public-private partnerships and research-funding organisations.
Información para pacientes
La conferencia “From seizures to genes: how Dravet syndrome is changing the way we treat epilepsy” es un evento dirigido a profesionales de la industria, incluyendo médicos, investigadores o representantes de reguladores y organismos públicos. Por lo tanto, la conferencia será en inglés y con el vocabulario técnico que requiere. Si aún quieres asistir, te puedes registrar en este enlace.
Las ponencias se grabarán en video y serán publicadas posteriormente a la reunión. Además, la Fundación Síndrome de Dravet compartirá con sus familias afiliadas los resultados de la reunión y estará disponible para dudas y preguntas.
Dravet Syndrome Foundation Spain was founded in 2011 by a group of parents with children affected by this rare disease, a group of impatient patients who do not resign themselves to the course of this disease. Our objective is to facilitate, foster and promote the development of research in the environment of Dravet syndrome in order to progress in the knowledge of its causes, improve its diagnosis and find effective treatments to mitigate and eliminate the adverse effects of this disease.