Dravet Syndrome Conference 2019

From seizures to genes: how Dravet syndrome is changing the way we treat epilepsy

When and where: 26th of September in Madrid

The Dravet Syndrome Conference “From seizures to genes: how Dravet syndrome is changing the way we treat epilepsy” will take place on Thursday 26th of September in Madrid, Spain.

When
Thursday 26th of September from 09:00 to 16:00h. Mark the date in your calendar and join us.

Where
Fundación ONCE – Calle de Sebastián Herrera, 15, Madrid
Click here for further details

Registration
Participation in this event is free of charge but registration is obligatory. To register, simply fill in this form

Theme – From seizures to genes: how Dravet syndrome is changing the way we treat epilepsy
The theme of our 2019 conference is “From seizures to genes: how Dravet syndrome is changing the way we treat epilepsy”.
This event is designed to bring together a range of professionals committed to improving the lives of people with epilepsy, including clinicians, researchers and professionals from the pharmaceutical industry.
There will be speaker presentations on the latest advances in epilepsy drug develpment using Dravet syndrome as an example of how the understanding and treatment of epilepsy has evolved and is constantly evolving over the years.
Presentations will include a variety of therapeutic modalities including small molecules, antisense oligonucleotides and gene therapy.

Agenda
Please find here the agenda

Who should participate
The organising committee encourages all stakeholders in health and medicines R&D to join this conference: policy makers, academics and researchers, pharmaceutical industry and other sectors in healthcare, SMEs and mid-sized enterprises, regulators, representatives of other public-private partnerships and research-funding organisations.

Spanish Información para pacientes
La conferencia  “From seizures to genes: how Dravet syndrome is changing the way we treat epilepsy” es un evento dirigido a profesionales de la industria, incluyendo médicos, investigadores o representantes de reguladores  y organismos públicos.  Por lo tanto, la conferencia será en inglés y con el vocabulario técnico que requiere. Si aún quieres asistir, te puedes registrar en este enlace.
Las ponencias se grabarán en video y serán publicadas posteriormente a la reunión. Además, la Fundación Síndrome de Dravet compartirá con sus familias afiliadas los resultados de la reunión y estará disponible para dudas y preguntas.

More information
Dravet Syndrome Foundation Spain was founded in 2011 by a group of parents with children affected by this rare disease, a group of impatient patients who do not resign themselves to the course of this disease. Our objective is to facilitate, foster and promote the development of research in the environment of Dravet syndrome in order to progress in the knowledge of its causes, improve its diagnosis and find effective treatments to mitigate and eliminate the adverse effects of this disease.

Sociedad Española de Neurología logotipo

Con el aval científico de la Sociedad Española de Neurología
With the scientific endorsement of the Spanish Society of Neurology